Genetics from Laboratory to Society: Societal Learning as an by Gerard De Vries, K. Horstman

By Gerard De Vries, K. Horstman

In line with distinct reviews of the particular use of genetic checking out in context, this publication seems on the moral and political questions raised by way of the increasing position of genetic info in society. not like the verified viewpoint which specializes in person freedom, the authors emphasize a practical procedure focussed on societal studying.

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Extra info for Genetics from Laboratory to Society: Societal Learning as an Alternative to Regulation

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They were not prepared to take this risk and declined further clarification of the grey result, at least for the time being. Clarifying a grey result in case of an assumed decision to terminate the pregnancy In the testing trajectory of a woman who had had amniocentesis in view of her age, trisomy 8 mosaicism was observed, whereas the technician had already found a trisomy 21. The trisomy 8 was recorded in two cells, which raised the question whether trisomy 8 mosaicism would be representative of the foetus.

When she told her husband, he replied that they were more than willing to take their chances in this matter. They told me that they knew a child that suffered from a similar problem with its genital organs. It turned out to be operable and, moreover, in relation to their child’s possible problems [hereditary metabolic disorder, the initial reason for prenatal diagnosis] these issues were no obstacle at all for continuing the pregnancy. 30 Genetics from Laboratory to Society The position of these parents led to a similar situation as in the first case.

I also wish to thank Wilma Poelma for her extensive explanations of all laboratory procedures and Heleen Schuring-Blom for checking the technical terms. 3 Genetic Diagnostics for Hereditary Breast Cancer: Displacement of Uncertainty and Responsibility Marianne Boenink Questioning the language of autonomous decision-making Women from families with frequent breast cancer can have their DNA tested. When the gene involved proves to have a defect they can decide to have their breasts removed preventively.

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